Epilepsy Research UK - funding independent research into epilepsy since 1991
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Title Bullet Information about epilepsy
 
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Here are some information sites we recommend for finding out more about epilepsy and epilepsy research. If you know of a good one we've not listed, please tell us about it.

At the end of this section we have also included some details about external events that are coming up, and links to the appropriate websites

Click here to scroll directly down to links to more information on:

 
For all aspects of epilepsy and seizures
www.epilepsy.com
Comprehensive, very readable information about all aspects of seizures, diagnosis, treatment and living with epilepsy. The site is US-based, so some information about medications, legal and cost issues may not be correct for residents of the UK.
Epilepsy Action's information pages
Excellent information about epilepsy, seizures, and treatment, including information on living with epilepsy in the UK (eg, driving and disability regulations).
National Society for Epilepsy's information pages
More information about epilepsy, seizures, treatment and including information on living with epilepsy in the UK (eg, driving and disability regulations).
eMedicine Clinical Knowledge base
Extensive technical information about human medical issues, including epilepsy, primarily designed for medical professionals
 
Other organisations (telephone numbers indicated are helplines)
Epilepsy Action: 0808 800 5050
Confidential advice and information from trained staff, on diagnosis, medication, driving, pregnancy and other issues related to living with epilepsy
National Society of Epilepsy: 01494 601400
For people with epilepsy, their families, friends, carers, employers, GPs, nurses, healthcare professionals, schools, students...
Brain and Spine Foundation: 0808 808 1000
A service run by neuroscience nurses and other health professionals, covering all brain and spine conditions, from fairly common to the very rare.
Epilepsy Scotland: 0808 800 2200
A confidential freephone number for anyone looking for advice or information about epilepsy.
UK Brain Bank for Autism & Related Developmental Research
A brain bank dedicated to research into autism and other related neurological disorders (including epilepsy)
 
Seizure types
Seizure types list from Epilepsy Ontario
Comprehensive list of seizure types with descriptions from Epilepsy Ontario
 
Treatments for epilepsy
Electronic Medicines Compendium
Searchable database of official technical information about all medications available in the UK, including side effects and possible interactions with other medicines. Type the name of the medication into the search box top right
Vagus Nerve Stimulator
Information site provided by Cyberonics who make the VNS implant. Patients' manual available to download.
Surgery information summary page
From InteliHealth, reviewed by Harvard Medical School
Ketogenic diet resources
Matthew's Friends - for parents of children on the ketogenic diet: information, advice, recipes, support and contacts
 
Resources for young people
YouthHealthTalk.org/epilepsy
In this multimedia website, launched by YouthHealthTalk.org,41 young people with epilepsy communicate their experiences through written information, videos and audio clips. It aims to help young people who have epilepsy to understand it better and feel more at ease
Epilepsy and pregnancy
UK Epilepsy and Pregnancy Register
The official site of the register
 
SUDEP
Epilepsy Bereaved
Information and support for people who have lost a loved one due to epilepsy
 
Genetics of epilepsy
AboutKidsHealth's genetics page
Very good overview of how genes cause epilepsy in both adults and children (may be a bit slow to load but worth it)
 
The science of the brain
Neuroscience for kids (and adults!)
Excellent, very readable site explaining how the brain works
 
Treatment regulations in the UK
Newer anti-epileptic drugs in adults - guidelines
National Institute for Clinical Excellence official guidance for the NHS in England and Wales; includes a patients' guide
Newer anti-epileptic drugs in children - guidelines
National Institute for Clinical Excellence official guidelines for the NHS in England and Wales; includes a patients' guide
Diagnosis and treatment of adults and children with epilepsy - guidelines
National Institute for Clinical Excellence official guidelines for the NHS in England and Wales; includes a patients' guide
Scottish Intercollegiate Guidelines Network
Official guidelines for treatment in the NHS in Scotland; includes patients' guides (click on Guidelines by topic on the left menu)
The Directgov directory
Comprehensive UK government website with links to information on all aspects of public services including health services, driving regulations and benefits
 
The latest research into epilepsy
MedScape
Up-to-date medical information and the newest research - free registration required
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The PubMed database
Global database of all medical research published in listed journals
 
Literature
Need - 2 - Know: Epilepsy The Essential Guide
Talks about every aspect of living with epilepsy, from types of seizure to legal entitlements
 
External events
 
 

External website links are provided for convenience and for information only; they do not constitute an endorsement by Epilepsy Research UK.

All external links open in a new window.

 
 
Epilepsy Research UK, PO Box 3004, London W4 4XT
Tel: (+44) (0) 20 8995 4781 • Fax: (+44) (0) 870 838 1069
Registered Charity No. 1100394

 
 
 
 
 
 
 
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