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The Joint
Epilepsy Council (JEC) is organising a
local lobby of Members of Parliament during
Epilepsy Awareness Week in May 2008.
The purpose of the local lobby is to encourage
as many individuals in as many constituencies
as possible to write to their local MPs,
MSPs or Assembly Members to request a meeting
at their local surgery or constituency office
during the Friday or Saturday of Epilepsy
Awareness Week (23 or 24 May 2008).
Most people never contact their local representatives,
and just writing a letter can make a big
difference. Often there is no more effective
way to get an MP's attention than personal
contact from constituents. The more MPs
that are educated and lobbied by their constituents
about epilepsy, the more likely it is that
the JEC will be able to solicit their support
in pressing the Government into action on
better services for people with epilepsy.
Meeting your MP could also provide a useful
opportunity for you to raise problems you
or your family have experienced in terms
of diagnosis, access to treatment, etc.
If you are unsure who your local MP is,
you can find out by typing your postcode
into the constituency locator on the House
of Commons website. This can be found here.
Alternatively, you can phone the House of
Commons Information Office on 020 7219 4272.
Here are some suggestions of what to ask
your MP when you meet:
- That they write to the Chief Executive
of your local Primary Care Trust voicing
your concerns about current service delivery
in the local area for people with epilepsy.
- That they write to the Secretary of
State for Health drawing attention to
a suitable campaign e.g. the lack of Epilepsy
Specialist Nurses (ESNs).
- Whether or not they have any suggestions
or comments with regards to your particular
issue on a local or national level.
- Whether they might consider taking forward
some Parliamentary action, for example
tabling some written questions or putting
forward a debate.
Click here to download
a sample letter ( ,
29 KB) that you can personalise to send
to your MP.
Click here to download
a briefing note ( ,
37 KB) to include with your letter.
The All Party Parliamentary Group on Epilepsy's
report Wasted
money, wasted lives
( ,
1 MB) can be downloaded here.
It would be very useful for us to be able
to gauge the level of participation in the
local lobby. Please email a copy of your
letter to your MP to us at info@eruk.org.uk
- we would be very interested to receive
it.
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