Your Stories

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Your Stories2019-11-28T11:38:17+00:00

It is the very personal accounts from our supporters that drive our collective sense of purpose. Thank you for sharing them, thank you for supporting us and thank you for being part of this powerful community working together to achieve a life free from epilepsy.

Sam Carter

SAM CARTER Someone once said to me that life carries on but that you watch it go by through plate glass Christine Carter lost her daughter to epilepsy. As she says “Someone onc [...]

Hamsia Yonis

HAMSIA Living with Epilepsy Life doesn’t stop because you have a seizure Hamsia, 29, was diagnosed with epilepsy at the age of 17. For years she couldn’t accept her condition, [...]

Nelle Fagan

NELLE FAGAN Musician I have had symptoms of temporal lobe epilepsy as far back as I can remember Nelle, a musician, believes that her epilepsy has contributed to her creativity [...]

Tom Jensen

TOM JENSON Neuroscientist at University College London I am very lucky in that 90% of the time I can forget that I have epilepsy. Until that changes I will most likely maintain m [...]

Paul Stevens

PAUL STEVENS Driving Again To anyone else in a similar situation I would say don’t give up, and don’t be afraid to ask your consultant for assistance Paul, 51, was diagnosed wi [...]

Sue Weedon

SUE WEEDON Living with Epilepsy You’ll be alright, you’ll feel better soon - is what my mum was told Sue’s mother has had epilepsy since childhood, but it wasn’t diagnosed unti [...]

Margaret Hay

MARGARET HAY Interior Designer Margaret was diagnosed with epilepsy in 2006 at the age of 56 Margaret, a former nurse, developed epilepsy when she was in her fifties. Her memor [...]

Amy Spencer

AMY SPENCER Statistics Consultant I hope that research will one day lead to a more personalised approach to treatment as epilepsy is different for everyone. Amy has had epileps [...]

Sam Porter

SAM PORTER Raising awareness of epilepsy is important as it does not get the profile that it should.  And research is vital to finding out what causes epilepsy and how to treat i [...]

Joan Upfield

JOAN UPFIELD Successful Kitchen Designer “I felt it coming on. I knew I was going to have one and would try to fight it  …. but you can’t Joan, a successful kitchen designer, c [...]

At a reception held on May 20th at the Royal Society to launch National Epilepsy Week, we announced grant funding of over £1 million across ten research projects all over the UK.

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What an amazing day Team ERUK had at the 2019 London Marathon. 14 amazing runners taking on this iconic challenge for Epilepsy Research UK and a fantastic cheering squad

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Do something amazing today and make a donation. Your money will go to support the pioneering research projects which help and support people with epilepsy

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