Living with epilepsy

Siblings of Children with Epilepsy Experience both Positive and Negative Feelings

Posted 7 Dec 2016 in Living with epilepsy

Having a sibling with epilepsy affects children both positively and negatively, according to a study presented at the annual meeting of the American Society of Epilepsy in Huston, Texas. In a press release, Study Lead Dr Barbara Kroner, at RTI International, said: “We found very few disapproving feelings among siblings toward their brothers and sisters with epilepsy. The negative feelings read more

New Study May help Determine Who Could and Who Shouldn’t Drive with Epilepsy

Posted 6 Dec 2016 in Living with epilepsy

The results of a new study, presented at the annual meeting of the American Epilepsy Society, in Houston, Texas, could help predict which individuals with epilepsy should not be driving and which ones could be driving safely. Study Lead Dr Hal Blumenfeld, at Yale University, commented: “We want to unearth more detail, to learn if there are people with epilepsy who read more

Impression Management Tactics May Positively Influence the Outcome of Job Interviews for People with Epilepsy

Posted 24 Nov 2016 in Living with epilepsy

Impression management (IM) tactics, such as personal storytelling and self-promotion can have significant and positive effects on the outcome of job interviews for people with epilepsy, according to a study published in the scientific journal Epilepsia. IM tactics could therefore be used as a “powerful strategy for empowering people with epilepsy to combat disability stigma, and offset negative perceptions of read more

Addressing the Side Effects of Antiepileptic Drugs as a Quality Indicator in Epilepsy Care

Posted 1 Nov 2016 in Living with epilepsy

According to a new study published in the Journal of Patient Preferences and Adherence, patient-reported medication adherence has potential as a quality indicator in the care of people with epilepsy. To assess whether addressing the side effects caused by antiepileptic drugs (AEDs) at every visit to the neurologist increases patient-reported medication adherence, a team of researchers led by Dr Daniel Hoch, read more

Restricting Calorie Intake May be Beneficial in Epilepsy

Posted 21 Oct 2016 in Living with epilepsy

Restricting calorie intake could protect brain cells from damage and have a beneficial effect in epilepsy, according to a rodent study published in the scientific journal, Aging Cell. Several studies on animal models have suggested a link between calorie intake and a longer lifespan, however the molecular mechanism of how restricting calorie intake can protect against disease is not well understood. Now, read more

People with Epilepsy Want to Know About the Risk of SUDEP, Study Suggests

Posted 17 Oct 2016 in Living with epilepsy

People with epilepsy want neurologists to inform them about the risk of sudden unexpected death in epilepsy (SUDEP), according to a study published in the scientific journal Epilepsy and Behavior. Those who took part in the study also believed that the optimal timing and setting to provide SUDEP counselling should be determined on a case-by-case basis. Dr Rajesh Ramachandran Nair and read more

Study Highlights the Link Between Excessive Alcohol Drinking and SUDEP

Posted 12 Oct 2016 in Living with epilepsy

The findings of a study at Southern Illinois University suggest that alcohol withdrawal in people with epilepsy (i.e. the alcohol-free period that follows a prolonged period of regular/heavy drinking) increases the risk of death following a seizure. This could be caused by respiratory compromise and longer seizure duration, which are both recognised risk factors for sudden unexpected death in epilepsy (SUDEP). Efforts to prevent excessive drinking in people with epilepsy read more

The Coil is a Safe and Acceptable Method of Contraception for Women with Epilepsy, Study Suggests

Posted 5 Oct 2016 in Living with epilepsy

The progestin-containing intrauterine device, also known as the coil, is a safe and well-tolerated form of contraception for women with epilepsy, according to a study published in the scientific journal, Epilepsia. “Although popular among all women, complex drug interactions limit the efficacy and safety of oral contraceptives for [women with epilepsy],” the authors write. They add: “Effective contraception enables women with epilepsy to plan read more

Pregnant women with epilepsy should be offered emotional support

Posted 15 Aug 2016 in Living with epilepsy

Pregnant women and new mothers with epilepsy have reduced life satisfaction, even in societies with high levels of welfare, according to a study published in the scientific journal Epilepsy & Behavior. The authors therefore suggest: “mothers with epilepsy and their partners should be examined for emotional complaints and partnership satisfaction during and after pregnancy.” The team of researchers, led by read more

People with Epilepsy Find it Easier to Understand Positive Emotions than Negative Emotions

Posted 2 Aug 2016 in Living with epilepsy

People with epilepsy may have difficulties with certain aspects of social cognition, and especially with identifying negative emotional states such as sarcasm and insincerity, according a study published in the scientific journal Epilepsia. The research also showed that the age of epilepsy onset can significantly impact on social cognition, with more marked effects arising when onset is during periods of significant social development in childhood and adolescence. read more

New Guidance on Epilepsy care for people who are Homeless

Posted 27 Jul 2016 in Living with epilepsy

The Queen’s Nursing Institute (QNI), in London, has published guidance for community nurses to help them support homeless people who have epilepsy. The guidance, entitled Working with Epilepsy and Homelessness: Guidance for Community Nurses, was produced by ten epilepsy specialist nurses in collaboration with ten specialist homeless health professionals. In a press release, David Parker-Radford, Homeless Health Project Manager at the read more

People with Epilepsy are more likely to be Smokers, Study Suggests

Posted 20 Jul 2016 in Living with epilepsy

There is a strong correlation between epilepsy and smoking according to a study of people living in French-speaking Switzerland. Although it has yet to be established whether or not epilepsy actually causes smoking, there appears to be a genetic link between susceptibility to epilepsy and to nicotine addiction. There is also a more indirect association, as people find benefit in smoking read more

New evidence that Nighttime Seizures Disrupt Memory Consolidation

Posted 19 Jul 2016 in Living with epilepsy

Nighttime seizures disrupt sleep-dependent memory consolidation, according to a pilot study published in the journal Clinical Neurophysiology. This finding is important, because it will help scientists to better understand the effect of seizures on memory consolidation, and the factors that may influence this. There is currently only limited data in adults, and some conflicting data in children, regarding sleep dependent read more

Children with Epilepsy should be monitored early for ADHD

Posted 15 Jul 2016 in Living with epilepsy

Children with epilepsy and febrile seizures have a higher risk of developing attention deficit and hyperactivity disorder (ADHD), according to a new study published in the scientific journal Pediatrics. This finding suggests that the parents of children with epilepsy or febrile seizures should be told to be vigilant about ADHD symptoms and pay close attention to academic performance, a factor easily read more

Measures should be put in place to Prevent Suicide in people with epilepsy

Posted 14 Jul 2016 in Living with epilepsy

Suicide rates are higher in people with epilepsy compared to the general population, according to results published in the journal Epilepsy and Behaviour. Suicide prevention measures should therefore be put in place to prevent such deaths. Rosemarie Kobau, one of the authors of the study, commented: “Caregivers of people with epilepsy and other members of the public can participate in read more

Important new insights into the effects of exercise on people with epilepsy

Posted 5 Jul 2016 in Living with epilepsy

According to a study at the University of Roehampton, exercise can have a beneficial effect upon the psychological, sociological and physical wellbeing of people with epilepsy. The research also provides information about the barriers to exercising faced by some people with epilepsy, and the different ways in which people manage the impact of uncontrolled seizures on their exercise routines. The read more

Structured discussions about SUDEP risk could help to save lives

Posted 1 Jul 2016 in Living with epilepsy

New research, published in the Journal of Neurology, suggests that most risk factors associated with sudden unexpected death in epilepsy (SUDEP) are modifiable, and that structured, person-centred discussions between doctors and patients could help to save lives. During the study, a team of researchers analysed data collected over nine continuous years, between 2004 and 2012, in Cornwall. They uncovered 93 read more

People diagnosed with epilepsy in childhood or adolescence risk long-term disadvantages

Posted 22 Jun 2016 in Epilepsy in children / Living with epilepsy

According to a new study, published in the scientific journal Epilepsia, people who are diagnosed with epilepsy in childhood or adolescence are at risk of long-term socio-economic consequences and higher personal healthcare costs. This finding is important, because it underlines the importance of raising awareness about epilepsy and emphasises the need for continued research, not only into the management of read more

Epileptic seizures could be predicted by monitoring heart activity

Posted 8 Jun 2016 in Living with epilepsy

Research from Japan shows that heart rate variability (HRV – the variation in the time interval between heartbeats) could potentially be used to predict epileptic seizures. Heart rate and rhythm can be easily measured using a wearable sensor, and evidence shows that they are affected by seizure activity. If the ‘predictive value’ of this is confirmed, we will be a read more

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