News from Epilepsy Research UK

Those with epilepsy at greater risk of dying from ‘unnatural causes’

Research findings have just been published which indicate that whilst the incidence is low, those with epilepsy are more likely than the population at large to die from ‘unnatural causes’. As Dr Hayley Gorton from Manchester University says “We already know that people with epilepsy are at increased risk of dying prematurely, but such a detailed examination of specific types read more

Epilepsy Research UK Celebrates Purple Day at the Houses of Parliament!

Posted 9 Apr 2018 in News from Epilepsy Research UK

As many of you will know, since 2008 the 26th March has been known as Purple Day, a day for people around the world to wear purple to increase awareness of epilepsy. This year our research manager Caoimhe Bennett represented Epilepsy Research UK at the All-Party Parliamentary Group (APPG) for Epilepsy, organised by Epilepsy Action, at Portcullis House. Other charities read more

The BBC Radio 4 Appeal Thursday 29th March: Nick Christian tells us how research helped his daughter

Posted 21 Mar 2018 in News from Epilepsy Research UK

The BBC Radio 4 Appeal was first broadcast on Sunday 25th March, and aired again on Thursday, 29th March.  Do please listen again to this heartfelt plea for more funds for research into epilepsy. Nick and his family experienced first hand, with his daughter Rachel, how advances in the field of neurology had enabled doctors to better locate and treat read more

Free Wills Month in March

Posted 25 Feb 2018 in News from Epilepsy Research UK

March is Free Wills Month. Thanks to our membership of the National Free Wills Network you can get a simple Will written, or your existing Will changed, by a local solicitor at no cost to you. There is absolutely no obligation on you to leave a gift to Epilepsy Research UK in your Will but, obviously, we hope that you read more

Meet a Researcher – 15 March, Newcastle

Posted 1 Feb 2018 in News from Epilepsy Research UK

We are delighted to be hosting our second regional ‘Meet a Researcher’ evening in central Newcastle on Thursday 15 March from 6 – 8pm. The evening will give you the chance to find out a bit more about us, and hear from a couple of our funded researchers who will talk about their research and how it’s been progressing. It read more

Daniel Blower fundraising for research

Posted 23 Jan 2018 in News from Epilepsy Research UK

During 2017 Daniel Blower raised an impressive £3,515, plus Gift Aid, fundraising in aid of Epilepsy Research UK. His exploits covered a head shave, a charity night fundraiser and finally culminated in running the Cardiff Half Marathon in October. Daniel has had epilepsy from a very young age and says he was “fortunate enough to have brain surgery 9 months read more

Introducing Angela Geer to Epilepsy Research UK

Posted 22 Jan 2018 in News from Epilepsy Research UK

We are pleased to welcome Angela Geer as interim Chief Executive of Epilepsy Research UK following the departure of Mike Rich at the end of 2017. We thank Mike for his time with the charity and wish him well with his future plans. Angela is a former Chief Executive of Epilepsy Society and brings with her a wealth of experience read more

Join Team ERUK in the Brighton Marathon!

Posted 16 Dec 2017 in News from Epilepsy Research UK

Epilepsy Research UK have guaranteed entry available in the Brighton Marathon on Sunday 15th April 2018. Will you join us and be part of Team ERUK? Now the UK’s second largest marathon, and  firm favourite in the calendar, don’t miss out on your chance to be involved.  The race route takes in the best of the City Centre, including the read more

Running in memory of Caspar Gaze

Posted 15 Dec 2017 in News from Epilepsy Research UK

Poppy, Beeze and Justin Gaze, along with Milly Gaze in Australia and Poppy’s boyfriend Rian Kealey have been running this year in memory of their nephew and cousin Caspar Gaze. Caspar very sadly died in April 2017 at the age of 22 and the Caspar Gaze Memorial Fund has been set up at Epilepsy Research UK in his memory. The read more

Epilepsy Research UK featured in a new report emphasising importance of charity funding of medical research

The Association of Medical Research Charities (AMRC) has released a short evidence report on the Charity Research Support Fund (CRSF) that sets out how the Fund enables the unique contributions of charities to health and well-being and outlines AMRC’s call on Government to enhance the CRSF in real terms in line with inflation and charity investment. The report also brings read more

Basic science: fundamental to clinical progress

Posted 27 Oct 2017 in News from Epilepsy Research UK

Basic science is fundamental to the study of medicine (and, unfortunately, there is nothing basic about it). Much of the research that Epilepsy Research UK supports involves basic science. It may seem a long way from clinical practice, but it is fundamental to the development of new epilepsy therapies. ‘Basic science’ refers to the highly skilled, usually laboratory-based, research that read more

Birmingham collaboration is improving childhood epilepsy care

Posted 11 Sep 2017 in News from Epilepsy Research UK

This news release describes a promising research collaboration between Aston University and Birmingham Children’s Hospital, which is making great strides for childhood epilepsy. Epilepsy Research UK Fellow, Dr Sukhvir Wright, is a key member of this team, and she has recently been interviewed about their work by Free Radio. The interview will be aired later this week; please check our read more

Autoimmunity: a small but significant and treatable cause of epilepsy

Posted 7 Sep 2017 in News from Epilepsy Research UK

What is autoimmune epilepsy? The immune system is designed to protect the body from attack from outside agents such as bacteria and viruses. However, sometimes things go wrong and autoimmune disease results. In autoimmune disease, “over-excited” specialised immune cells and proteins (including antibodies), whose usual role is to defend the body against infection, instead attack the body itself. It is read more

Autoimmune epilepsy: Current research in Oxford

Posted 7 Sep 2017 in News from Epilepsy Research UK

Click here to read about autoimmune epilepsy. A number of antibodies against different cell proteins have been detected in people with epilepsy but that does not automatically mean that these antibodies cause epilepsy. There are important questions to ask: Can the antibodies cause seizures themselves or are there other factors involved? Is the appearance of antibodies in the patient’s blood read more

Thank you Simon Osborn

Posted 16 Aug 2017 in News from Epilepsy Research UK

Simon Osborn is a veteran Epilepsy Research UK fundraiser. Simon started fundraising for the charity due to a friend’s child having epilepsy and then continued after he was diagnosed with epilepsy himself. This year Simon walked the whole length of the Thames. It was a tremendous effort and when I met Simon in Hammersmith towards the end of his walk read more

Untangling the genetics of severe childhood epilepsy

Posted 3 Aug 2017 in News from Epilepsy Research UK

“This (ERUK) grant has given us the opportunity to directly help families. Many of the parents who participated in this study desperately wanted to know why their child had severe epilepsy. It has been great to give answers to so many families. This has made real differences in the management of some of the children. At the same time, we’ve learnt a read more

Can we predict a person’s response to antiepileptic drug treatment?

Posted 28 Jul 2017 in News from Epilepsy Research UK

The ability to predict who will respond to antiepileptic drug (AED) treatment is something that epilepsy researchers are striving for. Not only would it reduce long, unfruitful trials of AEDs, it would generally make epilepsy care much more efficient. Professor Mark Richardson and colleagues, at King’s College London, have used a novel combination of functional MRI (fMRI) and EEG to read more

Tree planted in memory of Chris Wilson

Posted 24 Jul 2017 in News from Epilepsy Research UK

‘The Visitor‘, in Lancashire, has posted a story about Chris Wilson, who sadly died a year ago as a result of an epileptic seizure. We are sharing the article below as it would have been Chris’s birthday today. We would also like to thank Chris’s family and friends for the money they have raised for epilepsy research in his memory. Above: read more

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