News from Epilepsy Research UK

London Marathon 2017

Yesterday was my first London Marathon cheering on runners for Epilepsy Research UK as CEO of the charity. The whole event was inspirational and the effort that all of the runners made was fantastic. Until you have stood and watched people running at the 24 mile mark, you do not appreciate the effort involved. I was and still am stunned. read more

Brighton Marathon 2017

Posted 24 Apr 2017 in News from Epilepsy Research UK

Our runners and supporters provide us with a non-stop feeling of inspiration. The effort to run a marathon is immense and we thank all of our runners and the people who turn up to support them. If you could not be there, here is some video of Brighton 2017.

Exercise your free Will

Posted 19 Apr 2017 in News from Epilepsy Research UK

Leaving a legacy in your will to help fund research into the causes and treatment of epilepsy could have a lasting impact.  Epilepsy Research UK funds a wide range of research projects each year and we could not do that without the contributions of our supporters.  Legacies are an important part of our income and underpin some of our most read more

Fundraiser Simon Osborn claims to be “more mixed grill than Bear Grylls” as he gets ready to walk 184 miles of the River Thames

Epilepsy Research UK supporter and fundraiser Simon Osborn is training hard to get ready for a mammoth task.  Simon is walking the entire length of the River Thames.  The walk is a massive 184 miles.  Simon, who has epilepsy himself, is walking most of the way on his own and he expects the whole walk to take around 10 days. read more

Get active for research!

Posted 18 Jan 2017 in News from Epilepsy Research UK

This year  once again brings a fantastic events calendar with lots of exciting sporting events and challenges to get involved in! Proudly wear your green ERUK colours and make 2017 our best year yet! Join Team ERUK No matter what your ability there is something for everyone.  Whether a 5K Fun Run, Sponsored Walk, Marathon or Cycle event there is read more

Marathon Men Charity Lunch

Posted 17 Jan 2017 in News from Epilepsy Research UK

This spring James Brady, Jack Carr & James ‘Beans’ Low, Lyle’s very own #MarathonMen, are going to be running in the London marathon in memory of Tom Moulton in aid of Epilepsy Research UK. So aside from training ahead of the marathon, the lads now need to raise some funds! Enter the #MarathonMen Charity Lunch. On Sunday 12th February the read more

Rabbi Lionel Blue

Posted 21 Dec 2016 in News from Epilepsy Research UK

Rabbi Lionel Blue passed away on 19th December, aged 86. Rabbi Blue was diagnosed with epilepsy at age 57 and was one of the first people to talk openly about the condition and how it affected his life.    Rabbi Blue was a greatly valued friend of Epilepsy Research UK. He served as Vice President of the Epilepsy Research Foundation, and read more

Professor Brian Neville

Posted 20 Dec 2016 in News from Epilepsy Research UK

It is with great sadness that we announce the death of Professor Brian Neville, Emeritus Professor of Paediatric Neurology at University College London – Institute of Child Health (UCL-ICH).  Brian was a great ambassador for epilepsy and dedicated his life to improving the lives of children and young people with the condition. He held the first Prince of Wales’s Chair of read more

25th Anniversary Gala Ball

Posted 19 Nov 2016 in News from Epilepsy Research UK

Thank you to everyone who supported our 25th Anniversary Gala Ball which took place on Saturday 12 November at The Grange St Paul’s Hotel in London.  We had a fantastic night celebrating 25 years of epilepsy research and thank you to everyone involved who made it possible.    We held the event in the heart of London at The Grange St read more

ERUK study shows promising results for two antiepileptic drugs in pregnancy

An Epilepsy Research UK-funded study has shown that taking the antiepileptic drugs (AEDs) levetiracetam or topiramate during pregnancy may not have a negative impact on the baby’s IQ and thinking skills. The research, which also confirms the risks associated with valproate (another AED), is published in Neurology® online. There is accumulating evidence that exposure to valproate before birth is linked to a significantly increased chance of birth defects, developmental problems and lower IQ, especially at higher dosages. However, read more

Assessing anti-epileptic drug risk in pregnancy: are new methods as reliable as traditional ones?

Posted 24 Aug 2016 in News from Epilepsy Research UK

These are the findings from an Epilepsy Research UK (ERUK) grant, which was awarded to Dr Rachel Charlton, at the University of Bath, in 2014. Background For women with epilepsy pregnancy requires very careful planning, because exposure to some anti-epileptic drugs (AEDs) in the womb, valproate in particular, has been linked to an increased chance of birth defects, behavioural problems read more

ERUK final report: A new technique to improve the diagnosis and treatment of epilepsy

Posted 26 Jul 2016 in News from Epilepsy Research UK

Background Electroencephalography (EEG) is widely used in the diagnosis of epilepsy, but it relies on a person having a seizure whilst being monitored. This can lead to delays in diagnosis and treatment, unnecessary anxiety and reduced quality of life. To try and address this problem, Professor John Terry, at the University of Exeter, has been working alongside neurologists in London to read more

British 10K – Congratulations Team ERUK!

Posted 13 Jul 2016 in News from Epilepsy Research UK

The British 10K London Run took place on Sunday 10th July 2016 and what an incredible day for Epilepsy Research UK. The day began early, but the start line didn’t stay empty for long! Thousands of runners were soon lining up to run the streets of London, including several hundred who were flying the flag for Epilepsy Research UK. We were thrilled to read more

Bursary Opportunity for epilepsy researchers in the UK and Marseille

Posted 24 May 2016 in News from Epilepsy Research UK

Thanks to generous funding from its Vice-President, Mr Paul Newman, Epilepsy Research UK has launched a new initiative to build collaborations between epilepsy researchers in the UK and in Marseille, France. We are inviting applications for a bursary of up to £5,000, to support accommodation, travel and subsistence costs for a short research visit to Marseille (for UK applicants), or to the UK (for Marseille applicants). The read more

Investigating a new model of genetic epilepsy

Posted 19 May 2016 in News from Epilepsy Research UK

Grant Announcements 2016: “Individuals who carry mutations in genes that encode receptors activated by the excitatory neurotransmitter, glutamate, can suffer from a variety of disorders, many of which are associated with epilepsy. While our previous research has focused on studying glutamate receptors and their role in neuronal communication, the project funded by ERUK allows us to extend our work to a pre-clinical model that is a direct correlate of epileptic encephalopathy.” Professor David Wyllie

A new approach to blocking seizure networks in temporal lobe epilepsy

Posted 19 May 2016 in News from Epilepsy Research UK

Grant Announcements 2016: “Forward-thinking strategies for the most difficult-to-treat types of epilepsy are desperately needed. I will test whether controlling the activity of entire seizure-generating networks, as opposed to just the seizure foci, can be a more effective treatment to block seizures. To do so, I will use the technology of optogenetics, which has the potential to be translated to the clinic in the coming years, but can also “shine a light” on novel cellular targets to efficiently block seizures for other forms of clinical interventions.” Alfredo Gonzalez-Sulser

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