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Introducing you to our new Chief Executive: Maxine Smeaton

Epilepsy Research UK is delighted to announce that Maxine Smeaton has been appointed as our new Chief Executive Officer. Maxine has joined us from the Tuberous Sclerosis Association, where she was Interim CEO. She has a wealth of experience in the charity sector leading the renowned medical research charity Blond McIndoe and working in strategic development roles for both the read more

Early warning activity in the brain may lead to new treatments

Posted 28 Aug 2018 in Uncategorized

A small in-human research study offers hope of inhibiting focal seizures in patients with refractory epilepsy. Alongside the areas of the brain involved with a focal seizure, research carried out at the University of Alabama found that similar electrical activity was also evident in a key area of the brain which is involved in seizure generation (the anterior thalamic nucleus).  read more

Using brain tissue to test the impact of treatments on epilepsy and other neurological conditions

Professor Jurgen Knoblich, a molecular biologist at the Institute of Molecular Biotechnology of the Austrian Academy of Sciences in Vienna is confident that the way to cost effectively test drugs for incurable neurological conditions is to use human brain tissue. To date most new drugs are initially tested on animal models and although the animals are specifically bred to show read more

Would you like to help further research into epilepsy?

Interested in taking part in epilepsy research? Then look no further. Professor Henry Houlden, from University College London, is looking for volunteers to take part in his research.  He aims to recruit as many people with epilepsy as possible who are willing to give a blood sample so that their genome can be sequenced.  This will help to identify any read more

A ‘baby whale’ may help to further our understanding of epilepsy

Researchers from the University of Texas believe that what they have learnt from a ‘baby whale’ which uses electrical pulses to navigate around its world may help humans in the future by shedding light on how those same electrical pathways operate in conditions such as epilepsy.  Their findings have the potential to further our understanding of the role of potassium read more

Could there be a link between hypertension and epilepsy?

Posted 25 May 2018 in Epilepsy and its causes / Uncategorized

What might link hypertension (high blood pressure), epilepsy and an overactive bladder? According to Jianmin Cui, professor of biomedical engineering in the School of Engineering & Applied Science, at the University of Washington, St Louis, these conditions may be linked by electrical activity in a specific protein. In collaboration with other laboratories at the University of Missouri-Columbia and the University read more

Epilepsy Research UK featured in a new report emphasising importance of charity funding of medical research

The Association of Medical Research Charities (AMRC) has released a short evidence report on the Charity Research Support Fund (CRSF) that sets out how the Fund enables the unique contributions of charities to health and well-being and outlines AMRC’s call on Government to enhance the CRSF in real terms in line with inflation and charity investment. The report also brings read more

Leading Grimsby law firm raising money for Epilepsy Research UK in memory of Robert Abba.

Staff at a leading law firm are to saddle up and drop 200 ft in memory of a Grimsby student.  Robert Abba, 22, died after suffering an epileptic fit at home in Scartho. His mother Rachel works for Bridge McFarland solicitors and colleagues will take in such landmarks as Lincoln Castle and Grimsby Dock Tower as they run, cycle, skydive read more

UCL Neuroscience Symposium

Posted 16 Jun 2017 in Uncategorized

Today – Friday 16th – we have been at the annual UCL (University College London) Neuroscience Symposium.  It is immensely popular and attracts almost around 800 delegates.  Epilepsy Research UK projects were in evidence and I had the opportunity to meet some of our current researchers as well as young researchers that we would like to encourage in order to keep read more

2017 Epilepsy Research Awards announced at The Royal Society

On Monday Epilepsy Research UK announced the recipients of its 2017 grants at a reception at The Royal Society in London. (www.royalsociety.org) The event was attended by Epilepsy Research UK supporters and researchers and is an annual event which runs in National Epilepsy Week. As well as celebrating the new grants, the organisation was also recognising the contribution of the read more

Professor Helen Cross is announced as new President of Epilepsy Research UK

Epilepsy Research UK is proud and pleased to announce the appointment of Professor Helen Cross as President of the organisation.  Professor Cross has long been involved in the organisation being Chair of Trustees between 2005 and 2011.  We are delighted that Professor Cross has now agreed to be President of the organisation. About Professor Cross Professor Helen Cross is The read more

New US Guidelines on sudden unexpected death in epilepsy (SUDEP)

Posted 26 Apr 2017 in Living with epilepsy / Uncategorized

New guidelines from the American Academy of Neurology and the American Epilepsy Society, titled “Practice guideline: Sudden unexpected death in epilepsy incidence rates and risk factors” were presented at the 2017 American Academy of Neurology Annual Meeting currently being held in Boston, Massachusetts.  At the same time they were published in the journal Neurology. Guidelines author Dr Cynthia Harden said “Our read more

London Marathon 2017

Yesterday was my first London Marathon cheering on runners for Epilepsy Research UK as CEO of the charity. The whole event was inspirational and the effort that all of the runners made was fantastic. Until you have stood and watched people running at the 24 mile mark, you do not appreciate the effort involved. I was and still am stunned. read more

Fundraiser Simon Osborn claims to be “more mixed grill than Bear Grylls” as he gets ready to walk 184 miles of the River Thames

Epilepsy Research UK supporter and fundraiser Simon Osborn is training hard to get ready for a mammoth task.  Simon is walking the entire length of the River Thames.  The walk is a massive 184 miles.  Simon, who has epilepsy himself, is walking most of the way on his own and he expects the whole walk to take around 10 days. read more

Research sheds light onto how cellular defects caused by genetic mutation may lead to epilepsy

Posted 27 Mar 2017 in Uncategorized

A new study published in the leading scientific journal Scientific Reports describes how cellular abnormalities caused by defects in a gene called GRIN2A may lead to epilepsy.  Understanding the exact mechanism of how seizures develop at the cellular level could help scientists design better treatments against them in the future. It was already known that mutations in the GRIN2A gene read more

Classification of Epilepsies Updated

Posted 9 Mar 2017 in Uncategorized

The International League Against Epilepsy (ILAE) recently updated the system used to classify different types of epilepsy. It is hoped that the new system will pave the way to better research, diagnosis, and treatments in epilepsy. In a press release, Professor Ingrid Scheffer, a paediatric nephrologist and professor at The University of Melbourne said: “The new classification will help clinicians read more

Upcoming Event in Glasgow: Rare Disease Day

Posted 6 Feb 2017 in Uncategorized

This event is the first of its kind in Glasgow, held at the University of Glasgow, on the 28th February 2017. The day has a neurological / genetics theme with a number of local speakers with a specialism in epilepsy. The event is open to the public and is free to attend but registration is essential.  Policy makers, researchers, clinicians, charities or anyone with an interest in the area are also welcome. read more

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