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Epilepsy Research UK joins forces with co-morbidity charities to form Embracing Complexity Coalition

Last night at the House of Commons we were pleased to stand alongside a number of charities who have all agreed to work together to improve outcomes for people with neurodevelopmental conditions. The Embracing Complexity Coalition, lead by the team at Autistica, has released a report summarising the results of a survey of people living with Neurodevelopmental conditions to stimulate read more

ERUK brings world-leading experts together for 12th International Expert Workshop: Epilepsy & Neurodevelopmental Disorders

Posted 22 May 2019 in Uncategorized

On 14th and 15th March 2019, 50 world leading experts in epilepsy and neurodevelopmental disorder research were brought together by ERUK for our 12th International Expert Workshop at St Anne’s College, Oxford. Our International Expert Workshop first began in 1993, and since then has been a recurring biennial event. This workshop was chaired by Professor Sameer Zuberi from the Royal read more

Over £1Million invested in ground-breaking research into epilepsy by ERUK

Posted 21 May 2019 in Uncategorized

On Monday 20th May, to launch National Epilepsy Week, we announced an investment of over £1 million across ten potentially life changing and life saving epilepsy research projects in the UK. This investment brings the total amount the charity invested in scientific and clinical research to over £10 million. Speaking at the event, Professor Matthew Walker, our Chair of Trustees, read more

Edinburgh Meet a Researcher Event

On Thursday 4 April, Epilepsy Research UK collaborated with The University of Edinburgh to host an event showcasing some of the ground-breaking ERUK-funded research into epilepsy being carried out in Scotland. The evening was hosted by Professor Mike Cousin and Dr Richard Chin, Co-Directors of the Muir Maxwell Epilepsy Centre, University of Edinburgh, who curated an impressive line up of speakers read more

March is Free Wills Month

Thanks to our membership of the National Free Wills Network you can get a simple will written, or your existing will updated, by a local solicitor at no cost to you. It is a very simple process. Call us on 020 3096 7887, or email us at shona@eruk.org.uk.  Send us your name and address with reply code ‘Free Wills’, and read more

Introducing you to our new Chief Executive: Maxine Smeaton

Epilepsy Research UK is delighted to announce that Maxine Smeaton has been appointed as our new Chief Executive Officer. Maxine has joined us from the Tuberous Sclerosis Association, where she was Interim CEO. She has a wealth of experience in the charity sector leading the renowned medical research charity Blond McIndoe and working in strategic development roles for both the read more

Early warning activity in the brain may lead to new treatments

Posted 28 Aug 2018 in Uncategorized

A small in-human research study offers hope of inhibiting focal seizures in patients with refractory epilepsy. Alongside the areas of the brain involved with a focal seizure, research carried out at the University of Alabama found that similar electrical activity was also evident in a key area of the brain which is involved in seizure generation (the anterior thalamic nucleus).  read more

Using brain tissue to test the impact of treatments on epilepsy and other neurological conditions

Professor Jurgen Knoblich, a molecular biologist at the Institute of Molecular Biotechnology of the Austrian Academy of Sciences in Vienna is confident that the way to cost effectively test drugs for incurable neurological conditions is to use human brain tissue. To date most new drugs are initially tested on animal models and although the animals are specifically bred to show read more

Would you like to help further research into epilepsy?

Interested in taking part in epilepsy research? Then look no further. Professor Henry Houlden, from University College London, is looking for volunteers to take part in his research.  He aims to recruit as many people with epilepsy as possible who are willing to give a blood sample so that their genome can be sequenced.  This will help to identify any read more

A ‘baby whale’ may help to further our understanding of epilepsy

Researchers from the University of Texas believe that what they have learnt from a ‘baby whale’ which uses electrical pulses to navigate around its world may help humans in the future by shedding light on how those same electrical pathways operate in conditions such as epilepsy.  Their findings have the potential to further our understanding of the role of potassium read more

Could there be a link between hypertension and epilepsy?

Posted 25 May 2018 in Epilepsy and its causes / Uncategorized

What might link hypertension (high blood pressure), epilepsy and an overactive bladder? According to Jianmin Cui, professor of biomedical engineering in the School of Engineering & Applied Science, at the University of Washington, St Louis, these conditions may be linked by electrical activity in a specific protein. In collaboration with other laboratories at the University of Missouri-Columbia and the University read more

Epilepsy Research UK featured in a new report emphasising importance of charity funding of medical research

The Association of Medical Research Charities (AMRC) has released a short evidence report on the Charity Research Support Fund (CRSF) that sets out how the Fund enables the unique contributions of charities to health and well-being and outlines AMRC’s call on Government to enhance the CRSF in real terms in line with inflation and charity investment. The report also brings read more

Leading Grimsby law firm raising money for Epilepsy Research UK in memory of Robert Abba.

Staff at a leading law firm are to saddle up and drop 200 ft in memory of a Grimsby student.  Robert Abba, 22, died after suffering an epileptic fit at home in Scartho. His mother Rachel works for Bridge McFarland solicitors and colleagues will take in such landmarks as Lincoln Castle and Grimsby Dock Tower as they run, cycle, skydive read more

UCL Neuroscience Symposium

Posted 16 Jun 2017 in Uncategorized

Today – Friday 16th – we have been at the annual UCL (University College London) Neuroscience Symposium.  It is immensely popular and attracts almost around 800 delegates.  Epilepsy Research UK projects were in evidence and I had the opportunity to meet some of our current researchers as well as young researchers that we would like to encourage in order to keep read more

2017 Epilepsy Research Awards announced at The Royal Society

On Monday Epilepsy Research UK announced the recipients of its 2017 grants at a reception at The Royal Society in London. (www.royalsociety.org) The event was attended by Epilepsy Research UK supporters and researchers and is an annual event which runs in National Epilepsy Week. As well as celebrating the new grants, the organisation was also recognising the contribution of the read more

Professor Helen Cross is announced as new President of Epilepsy Research UK

Epilepsy Research UK is proud and pleased to announce the appointment of Professor Helen Cross as President of the organisation.  Professor Cross has long been involved in the organisation being Chair of Trustees between 2005 and 2011.  We are delighted that Professor Cross has now agreed to be President of the organisation. About Professor Cross Professor Helen Cross is The read more

New US Guidelines on sudden unexpected death in epilepsy (SUDEP)

Posted 26 Apr 2017 in Living with epilepsy / Uncategorized

New guidelines from the American Academy of Neurology and the American Epilepsy Society, titled “Practice guideline: Sudden unexpected death in epilepsy incidence rates and risk factors” were presented at the 2017 American Academy of Neurology Annual Meeting currently being held in Boston, Massachusetts.  At the same time they were published in the journal Neurology. Guidelines author Dr Cynthia Harden said “Our read more

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