Newly diagnosed

Being told you have epilepsy can be quite a shock, and we understand if you are concerned and confused at the moment. We certainly don’t wish to bombard you with information at this stage, but we suspect you’ve probably got hundreds of questions you’d like to ask. So, although we can’t provide all the answers, we’d like to let you know about some of the resources that we have to help you learn more about your epilepsy and how to manage it.

You may have noticed the video on our home page. This is one of several accounts by researchers and supporters explaining what epilepsy is, how anti-epileptic drugs work and what it can be like to live with epilepsy. Click here to view the full range. We also have a ‘Real stories’ page, where you can read more about people’s real-life experiences.

The ‘What is epilepsy‘ section of our website contains detailed information about the causes, diagnosis and treatment of epilepsy, along with examples of the research that we are funding in these areas. Within this section you can access our range of online leaflets, which give information on a broad range of topics, from how epilepsy is diagnosed to how people with epilepsy can stay safe at work. These have recently been updated and we look forward to hearing your feedback!

Some people with epilepsy find it helpful to talk to others in a similar situation, and we have an online community forum that enables you to do just that. It’s free to join and you can be as involved as you wish. The current members are very supportive and always happy to respond to questions. You can also share your views and experiences on our Facebook page and Twitter feed!

We really hope that you find these resources useful and if you have any questions, please don’t hesitate to contact us on 020 8747 5024 or at