News

Below are the most recent news stories about epilepsy from Epilepsy Research UK and from around the world. You can choose different categories from the side bar on the left (for details of grants made prior to 2012, please visit our research portfolio). You can also catch up with Epilepsy Research UK's fundraising and research news in our supporter newsletters.

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Investigating the underlying mechanisms of Sudden Unexpected Death in Epilepsy (SUDEP)

Scientific Title: Do microglia prevent seizure-induced cardiorespiratory dysfunction? Lead investigator: Professor Nicholas Dale, University of Warwick Co-investigators: Dr Amol Bhandare, University of Warwick Project grant: £172,218, 2 years “Anaesthesia depresses neural activity, therefore being able to image the brainstem cardiorespiratory neuronal network and beneficial effects of microglial activation or inhibition during seizures in freely behaving animals offers therapeutic strategies to read more

Predicting and reducing language deficits from temporal lobe epilepsy surgery

Lead investigator: Dr Sjoerd Vos, Department of Medical Physics and Biomedical Engineering, University College London Co-investigators: Prof John Duncan, UCL, Dr Peter Taylor, Newcastle University, Dr Pamela Thompson, UCL,  Dr Sallie Baxendale, UCL Project grant: £163,573, 3 years “Our project aims to improve treatment options in those people who do not benefit from epilepsy medication. In the right cases, surgery read more

Edinburgh Meet a Researcher Event

On Thursday 4 April, Epilepsy Research UK collaborated with The University of Edinburgh to host an event showcasing some of the ground-breaking ERUK-funded research into epilepsy being carried out in Scotland. The evening was hosted by Professor Mike Cousin and Dr Richard Chin, Co-Directors of the Muir Maxwell Epilepsy Centre, University of Edinburgh, who curated an impressive line up of speakers read more

Phenomenal amount raised for Epilepsy Research UK

Posted 30 Apr 2019 in News from Epilepsy Research UK

A total of £99,285.48 was raised for ERUK by Club Triumph’s Round Britain Reliability Run, an epic event around Britain taking in John O’Groats to Land’s End. When first contacted in 2017 by Tim Bancroft, Event Organiser of Club Triumph’s Round Britain Reliability Run, we had no idea how exceptional our partnership would turn out to be. We were chosen read more

Meet a Researcher – Thursday 4 April, Edinburgh

Posted 25 Mar 2019 in News from Epilepsy Research UK

Join us on Thursday 4th April from 6-8pm at The University of Edinburgh, EH8 This will be a unique opportunity to hear about ground-breaking research into epilepsy being carried out in Scotland.  A team of Epilepsy Research UK (ERUK) funded researchers will be showcasing their work and opening the floor to you as supporters to ask questions and understand more read more

March is Free Wills Month

Thanks to our membership of the National Free Wills Network you can get a simple will written, or your existing will updated, by a local solicitor at no cost to you. It is a very simple process. Call us on 020 3096 7887, or email us at shona@eruk.org.uk.  Send us your name and address with reply code ‘Free Wills’, and read more

Epilepsy Research UK’s 2019 International Expert Workshop

Epilepsy Research UK has a proud history of organising international expert workshops on ‘hot topics’ in epilepsy research. Since their inception in 1993 the intention has been to bring together some of the best minds in epilepsy research from around the world to share new research findings, and to discuss and debate novel approaches to furthering our understanding and treatment read more

SUDEP Action and ERUK supporting judicial review of Government to protect epilepsy patients

Posted 20 Feb 2019 in News from Epilepsy Research UK

On 19th February the The Good Law Project threatened to issue judicial review proceedings on Tuesday 26 February, unless the Government cancels powers allowing pharmacists to alter prescriptions in the event of medicines shortages. SUDEP Action are supporting this process by providing evidence on the potentially catastrophic impact this could have on those living with epilepsy. Channel4 News aired an informative read more

The supply of antiepileptic medication in the event of a ‘no-deal Brexit’

In December of 2018 it became apparent that in the event of serious drug shortages as a result of a ‘no deal Brexit’, the Government had plans to use emergency powers to authorise pharmacists to overrule medical prescriptions. This ‘serious shortage protocol’ caused serious concern amongst a coalition of epilepsy and neurological organisations who are concerned with safeguarding patients. The read more

What would the impact of a no-deal Brexit have on the epilepsy research community in the UK?

We are all of us wondering what the repercussions of a no-deal Brexit would have on our lives but in the following summary, our CEO, Maxine Smeaton spells out a few of the possible effects of a no-deal on the epilepsy research community. We at ERUK, along with other epilepsy charities are committed to maximising support for medical research in read more

Big win for people with epilepsy: epilepsy medications will be exempt from Brexit after coalition intervenes

The Government has pledged to exempt epilepsy patients from its plans for post-Brexit medicine supplies after experts said some people could die. The Department of Health and Social Care is proposing to give pharmacists powers to dispense alternative drugs if those prescribed by GPs are in short supply after Britain leaves the EU. But the heads of Britain’s largest epilepsy read more

Could drugs licensed for other conditions help in the treatment of epilepsy?

Posted 3 Jan 2019 in Anti-epileptic drugs / Epilepsy general

“Taking a new look at medicines that are already approved for clinical use may help identify treatments that could reduce seizures and improve the quality of life for people with epilepsy who have been unable to find effective therapies,” said Vicky Whittemore, PhD, at the National Institute of Neurological Disorders and Stroke (NINDS). The development of new drugs is a read more

Is it possible to distinguish between epilepsy and psychogenic non-epileptic seizures?

“Many individuals are being treated for epilepsy who do not actually have this disorder”, so says Peter Crino, MD, PhD, Chair of the Department of Neurology at the University of Maryland School of Medicine. Psychogenic Non-Epileptic Seizures (PNES) are common and may account for up to 20% of people being treated for epilepsy. PNES are events of psychological origin, resembling read more

New genetic study of epilepsy may reveal future treatments

A study involving nearly 45,000 participants, has discovered 11 new genes associated with epilepsy. Researchers compared the DNA of 15,000 people with epilepsy to the DNA of 30,000 people without epilepsy in the largest study of its’ kind to implicate the 11 new genes. They also found that the majority of current anti-epileptic drugs directly target one or more of read more

The link between stress and seizures: Final Report

In 2014 Professor Stafford Lightman at the University of Bristol was awarded a pilot grant of £29,208 to investigate the link between stress and seizures. The association between stress and seizures is well recognised, however the mechanisms for this relationship are still not understood. Professor Lightman and his team from the University of Bristol and the University of Exeter, focused read more

Nathan Liptrot – why I fundraise for research

Posted 5 Dec 2018 in News from Epilepsy Research UK

Nathan has been an enthusiastic fundraiser for us, so we thought we would find out more about why he has chosen Epilepsy Research UK as his ‘charity of choice’. Why is it that any organisation needs to raise funds? In many cases it is because there is a lack of government funding and even where funding is available, voluntary funding read more

Language Development After Epilepsy Surgery in Children: Final Report

This is the final report for a 2011 project grant for £99,805 awarded to Dr Torsten Baldeweg, Dr Frederique Liegeois, Professor Helen Cross, Dr Peter Rankin, and Professor Faraneh Vargha-Khadem at the Institute of Child Health, University College London.  Approximately one third of children with epilepsy do not respond to treatment with medication, and a proportion of these children may be considered for read more

Genetic & Autoimmune Childhood Epilepsy (GACE) Study: Final Report

This is the final report for a 2013 project grant of £149,481 awarded to Professor Sameer Zuberi at the Royal Hospital for Children in Glasgow. The purpose of this study was to investigate how new genetic testing technologies can improve the diagnosis and treatment of epilepsy. This is the first study of its’ kind, and included all children in Scotland read more

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